EULAR PARE: Knowledge Transfer Programme

The question, how patient participation in projects works in everyday practice, was a main goal of the EULAR Knowledge Transfer Programme in which Poland, Sweden and the Netherlands participated in the period between June to October 2019. Four Polish representatives had the occasion to learn about the practice of patient partner inclusion in the therapeutic process, in medical education programs and in scientific research. An interesting approach is to explain the practice of patient involvement to researchers with a guideline for researchers. In Sweden, patient research partners (PRPs) have been educated to participate in research projects since 2008. In total 60 PRPs have been educated. The PRPs participate in activities to identifying research gaps that are important and relevant to “end users”, persons with rheumatic disorders. Authors firmly believe that the time has come to learn a lesson from The Netherlands and Sweden.

Abstract licence: CC BY-NC-SA

2 more references, whose wording the paper’s licence keeps private.

A person counts once a day per paper. We keep no cookie and no address: a reader is a hash that changes every day. Any month under five reads shows no number.