Factors associated with patient values among individuals with tuberculosis: a mixed-methods study using a patient- and family-centered care approach

Tuberculosis (TB) is a major global health problem, especially in rural areas with limited access to healthcare services. Beyond physical symptoms, its impact extends to psychological and social burdens, significantly affecting the patients’ quality of life during the lengthy treatment period. This study aimed to analyze the quality of life of TB patients using a patient- and family-centered care (PFCC) model. A mixed-methods design with an explanatory sequential approach was used. The quantitative phase involved 180 purposively selected patients with TB, with data collected via structured questionnaires and analyzed using Spearman’s rho correlation test. The qualitative phase employed a descriptive approach, involving in-depth interviews with 11 patients and thematic analysis. Results showed that PFCC dimensions – respect, partnership, care coordination, communication, and information sharing – were significantly associated with perceived patient value, with respect showing the strongest correlation. Four main qualitative themes were identified: optimism regarding recovery, responses during treatment, provision of information, and family and health worker support. These findings confirm that patient-perceived value is closely tied to PFCC elements. The study suggests that integrating PFCC into TB healthcare programs through supportive strategies, such as care groups and tailored education, can improve adherence, reduce stigma, and enhance treatment outcomes.

Abstract licence: CC BY-NC

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