Stigma of People with HIV/AIDS in Sub-Saharan Africa: A Literature Review

Abstract

The aim of this literature review is to elucidate what is known about HIV/AIDS and stigma in Sub-Saharan Africa. Literature about HIV/AIDS and stigma in Sub-Saharan Africa was systematically searched in Pubmed, Medscape, and Psycinfo up to March 31, 2009. No starting date limit was specified. The material was analyzed using Gilmore and Somerville's (1994) four processes of stigmatizing responses: the definition of the problem HIV/AIDS, identification of people living with HIV/AIDS (PLWHA), linking HIV/AIDS to immorality and other negative characteristics, and finally behavioural consequences of stigma (distancing, isolation, discrimination in care). It was found that the cultural construction of HIV/AIDS, based on beliefs about contamination, sexuality, and religion, plays a crucial role and contributes to the strength of distancing reactions and discrimination in society. Stigma prevents the delivery of effective social and medical care (including taking antiretroviral therapy) and also enhances the number of HIV infections. More qualitative studies on HIV/AIDS stigma including stigma in health care institutions in Sub-Saharan Africa are recommended.

References 72

1. 1.

   This reference’s wording can’t be shown under the paper’s licence.

   Not in our library

2. 2.

   Greeff M, Phetlhu R, Makoae LN, et al. Disclosure of HIV status: experiences and perceptions of persons living with HIV/AIDS and nurses involved in their care in Africa. Qualitative Health Research. 2008;18(3):311-324.

   Not in our library10.1177/1049732307311118

3. 3.
   The Stigma of Being HIV-Positive in Africa · 2005

   No notice
4. 4.

   Gerbert B, Sumser J, Maguire BT. The impact of who you know and where you live on opinions about AIDS and health care. Social Science and Medicine. 1991;32(6):677-681.

   Not in our library10.1016/0277-9536(91)90146-4

5. 5.

   Herek GM, Glunt EK. An epidemic of stigma: public reactions to AIDS. American Psychologist. 1988;43(11):886-891.

   Not in our library10.1037//0003-066x.43.11.886

6. 6.

   Campbell C, Nair Y, Maimane S, Nicholson J. ‘Dying twice’: a multi-level model of the roots of AIDS stigma in two South African communities. Journal of Health Psychology. 2007;12(3):403-416.

   Not in our library10.1177/1359105307076229

7. 7.

   Miller AN, Rubin DL. Factors leading to self-disclosure of a positive HIV diagnosis in Nairobi, Kenya: people living with HIV/AIDS in the Sub-Sahara. Qualitative Health Research. 2007;17(5):586-598.

   Not in our library10.1177/1049732307301498

8. 8.

   Goldin CS. Stigmatization and AIDS: critical issues in public health. Social Science and Medicine. 1994;39(9):1359-1366.

   Not in our library10.1016/0277-9536(94)90366-2

9. 9.

   Gilmore N, Somerville MA. Stigmatization, scapegoating and discrimination in sexually transmitted diseases: overcoming ‘them’ and ‘us’. Social Science and Medicine. 1994;39(9):1339-1358.

   Not in our library10.1016/0277-9536(94)90365-4

10. 10.

    Hardon A, Boonmongkon P, Streefland P, et al. Applied Health Research Manual Anthropology of Health and Health Care. 1995.

    Not in our library

11. 11.

    Goffman E. Stigma: Notes on the Management of Spoiled Identity. 1963.

    Not in our library

12. 12.

    Mawar N, Saha S, Pandit A, Muhajan U. The third phase of HIV pandemic: social consequences of HIV/AIDS stigma & discrimination & future needs. Indian Journal of Medical Research. 2005;122(6):471-484.

    Not in our library

13. 13.

    Strebel A, Crawford M, Shefer T, et al. Social constructions of gender roles, gender-based violence and HIV/AIDS in two communities of the Western Cape, South Africa. SAHARA. 2006;3(3):516-528.

    Not in our library10.1080/17290376.2006.9724879

14. 14.

    Taylor B. HIV, stigma and health: integration of theoretical concepts and the lived experiences of individuals. Journal of Advanced Nursing. 2001;35(5):792-798.

    Not in our library10.1046/j.1365-2648.2001.01912.x

15. 15.

    This reference’s wording can’t be shown under the paper’s licence.

    Not in our library

16. 16.

    Simbayi LC, Kalichman S, Strebel A, Cloete A, Henda N, Mqeketo A. Internalized stigma, discrimination, and depression among men and women living with HIV/AIDS in Cape Town, South Africa. Social Science and Medicine. 2007;64(9):1823-1831.

    Not in our library10.1016/j.socscimed.2007.01.006

17. 17.

    Wood K, Lambert H. Coded talk, scripted omissions: the micropolitics of AIDS talk in South Africa. Medical Anthropology Quarterly. 2008;22(3):213-233.

    Not in our library10.1111/j.1548-1387.2008.00023.x

18. 18.

    Muula AS. What should HIV/AIDS be called in Malawi? Nursing Ethics. 2005;12(2):187-192.

    Not in our library10.1191/0969733005ne781oa

19. 19.

    Uys L, Chirwa M, Dlamini P, et al. “Eating plastic,”, “Winning the lotto,”, “Joining the www”... descriptions of HIV/AIDS in Africa. Journal of the Association of Nurses in AIDS Care. 2005;16(3):11-21.

    Not in our library10.1016/j.jana.2005.03.002

20. 20.

    Visser MJ, Makin JD, Vandormael A, Sikkema KJ, Forsyth BWC. HIV/AIDS stigma in a South African community. AIDS Care. 2009;21(2):197-206.

    Not in our library10.1080/09540120801932157

21. 21.

    Iwelunmor J, Airhihenbuwa CO, Okoror TA, Brown DC, Belue R. Family systems and HIV/AIDS in South Africa. International Quarterly of Community Health Education. 2006;27(4):321-335.

    Not in our library10.2190/iq.27.4.d

22. 22.

    Ulasi CI, Preko PO, Baidoo JA, et al. HIV/AIDS-related stigma in Kumasi, Ghana. Health and Place. 2009;15(1):255-262.

    Not in our library10.1016/j.healthplace.2008.05.006

23. 23.

    Hartwig KA, Kissioki S, Hartwig CD. Church leaders confront HIV/AIDS and stigma: a case study from Tanzania. Journal of Community and Applied Social Psychology. 2006;16(6):492-497.

    Not in our library

24. 24.

    Okoror TA, Airhihenbuwa CO, Zungu M, Makofani D, Brown DC, Iwelunmor J. “My mother told me i must not cook anymore”—food, culture, and the context of HIV- and aids-related stigma in three communities in South Africa. International Quarterly of Community Health Education. 2007;28(3):201-213.

    Not in our library10.2190/iq.28.3.c

25. 25.

    Otolok-Tanga E, Atuyambe L, Murphy CK, Ringheim KE, Woldehanna S. Examining the actions of faith-based organizations and their influence on HIV/AIDS-related stigma: a case study of Uganda. African Health Sciences. 2007;7(1):55-60.

    Not in our library10.5555/afhs.2007.7.1.55

26. 26.

    Chimwaza AF, Watkins SC. Giving care to people with symptoms of AIDS in rural Sub-Saharan Africa. AIDS Care. 2004;16(7):795-807.

    Not in our library10.1080/09540120412331290211

27. 27.

    Duffy L. Suffering, shame, and silence: the stigma of HIV/AIDS. Journal of the Association of Nurses in AIDS Care. 2005;16(1):13-20.

    Not in our library10.1016/j.jana.2004.11.002

28. 28.

    Petros G, Airhihenbuwa CO, Simbayi L, Ramlagan S, Brown B. HIV/AIDS ‘othering’ in South Africa: the blame goes on. Culture, Health and Sexuality. 2006;8(1):67-77.

    Not in our library10.1080/13691050500391489

29. 29.

    Kalichman SC, Simbayi LC, Jooste S, et al. Development of a brief scale to measure AIDS-related stigma in South Africa. AIDS and Behavior. 2005;9(2):135-143.

    Not in our library10.1007/s10461-005-3895-x

30. 30.

    Plummer M, Mshana G, Wamoyi J, et al. ‘The man who believed he had AIDS was cured’: AIDS and sexually-transmitted infection treatment-seeking behaviour in rural Mwanza, Tanzania. AIDS Care. 2006;18(5):460-466.

    Not in our library10.1080/09540120500220367

31. 31.

    Muyinda H, Seeley J, Pickering H, Barton T. Social aspects of AIDS-related stigma in rural Uganda. Health and Place. 1997;3(3):143-147.

    Not in our library10.1016/s1353-8292(97)00010-5

32. 32.

    Hatchett LA, Kaponda CPN, Chihana CN, et al. Health-seeking patterns for AIDS in Malawi. AIDS Care. 2004;16(7):827-833.

    Not in our library10.1080/09540120412331290112

33. 33.

    Thorsen VC, Sundby J, Martinson F. Potential initiators of HIV-related stigmatization: ethical and programmatic challenges for PMTCT programs. Developing World Bioethics. 2008;8(1):43-50.

    Not in our library10.1111/j.1471-8847.2008.00227.x

34. 34.

    Daniel OJ, Oladapo OT. Acceptability of prenatal HIV screening at the primary care level in Nigeria. Journal of Obstetrics and Gynaecology. 2006;26(3):191-194.

    Not in our library10.1080/01443610500508196

35. 35.

    Hutchinson PL, Mahlalela X. Utilization of voluntary counseling and testing services in the Eastern Cape, South Africa. AIDS Care. 2006;18(5):446-455.

    Not in our library10.1080/09540120500213511

36. 36.

    Nyblade LC, Menken J, Wawer MJ, et al. Population-based HIV testing and counseling in rural Uganda: participation and risk characteristics. Journal of Acquired Immune Deficiency Syndromes. 2001;28(5):463-470.

    Not in our library10.1097/00042560-200112150-00010

37. 37.

    Maedot P, Haile A, Lulseged S, Belachew A. Determinants of vct uptake among pregnant women attending two ANC clinics in Addis Ababa City: unmatched case control study. Ethiopian Medical Journal. 2007;45(4):335-342.

    Not in our library

38. 38.

    Kalichman SC, Simbayi LC. HIV testing attitudes, AIDS stigma, and voluntary HIV counselling and testing in a black township in Cape Town, South Africa. Sexually Transmitted Infections. 2003;79(6):442-447.

    Not in our library10.1136/sti.79.6.442

39. 39.

    Nachega JB, Lehman DA, Hlatshwayo D, Mothopeng R, Chaisson RE, Karstaedt AS. HIV/AIDS and antiretroviral treatment knowledge, attitudes, beliefs, and practices in HIV-infected adults in Soweto, South Africa. Journal of Acquired Immune Deficiency Syndromes. 2005;38(2):196-201.

    Not in our library10.1097/00126334-200502010-00011

40. 40.

    Turan JM, Miller S, Bukusi EA, Sande J, Cohen CR. HIV/AIDS and maternity care in Kenya: how fears of stigma and discrimination affect uptake and provision of labor and delivery services. AIDS Care. 2008;20(8):938-945.

    Not in our library10.1080/09540120701767224

41. 41.

    Orner P, Cooper D, Myer L, Zweigenthal V, Bekker L-G, Moodley J. Clients’ perspectives on HIV/AIDS care and treatment and reproductive health services in South Africa. AIDS Care. 2008;20(10):1217-1223.

    Not in our library10.1080/09540120701867008

42. 42.

    Akani CI, Erhabor O. Rate, pattern and barriers of HIV serostatus disclosure in a resource-limited setting in the Niger Delta of Nigeria. Tropical Doctor. 2006;36(2):87-89.

    Not in our library10.1258/004947506776593378

43. 43.

    Blackstock O. Curing stigma—the limits of antiretroviral access. New England Journal of Medicine. 2005;353(8):p. 752.

    Not in our library10.1056/nejmp058198

44. 44.

    Kayombo EJ, Mbwambo ZH, Massila M. Role of traditional healers in psychosocial support in caring for the orphans: a case of Dar-es Salaam City, Tanzania. Journal of Ethnobiology and Ethnomedicine. 2005;1:p. 3.

    Not in our library10.1186/1746-4269-1-3

45. 45.

    Mshana GH, Wamoyi J, Busza J, et al. Barriers to accessing antiretroviral therapy in Kisesa, Tanzania: a qualitative study of early rural referrals to the national program. AIDS Patient Care and STDs. 2006;20(9):649-657.

    Not in our library10.1089/apc.2006.20.649

46. 46.

    Campbell C, Foulis CA, Maimane S, Sibiya Z. “I have an evil child at my house”: stigma and HIV/AIDS managament in a South African community. American Journal of Public Health. 2005;95(5):808-815.

    Not in our library10.2105/ajph.2003.037499

47. 47.

    Thomas F. Stigma, fatigue and social breakdown: exploring the impacts of HIV/AIDS on patient and carer well-being in the Caprivi Region, Namibia. Social Science and Medicine. 2006;63(12):3174-3187.

    Not in our library10.1016/j.socscimed.2006.08.016

48. 48.

    Skinner D, Mfecane S. Stigma, discrimination and the implications for people living with HIV/AIDS in South Africa. SAHARA. 2004;1(3):157-164.

    Not in our library10.1080/17290376.2004.9724838

49. 49.

    Amuyunzu-Nyamongo M, Okeng’o L, Wagura A, Mwenzwa E. Putting on a brave face: the experiences of women living with HIV and AIDS in informal settlements of Nairobi, Kenya. AIDS Care. 2007;19(supplement 1):S25-S34.

    Not in our library10.1080/09540120601114618

50. 50.

    Mill JE. Shrouded in secrecy: breaking the news of HIV infection to Ghanaian women. Journal of Transcultural Nursing. 2003;14(1):6-16.

    Not in our library10.1177/1043659602238345

51. 51.

    Antelman G, Smith Fawzi MC, Kaaya S, et al. Predictors of HIV-1 serostatus disclosure: a prospective study among HIV-infected pregnant women in Dar es Salaam, Tanzania. AIDS. 2001;15(14):1865-1874.

    Not in our library10.1097/00002030-200109280-00017

52. 52.

    Maman S, Mbwambo J, Hogan NM, Kilonzo GP, Sweat M. Women’s barriers to HIV-1 testing and disclosure: challenges for HIV-1 voluntary counselling and testing. AIDS Care. 2001;13(5):595-603.

    Not in our library10.1080/09540120120063223

53. 53.

    Ndinya-Achola J, Ambani J, Temmerman M, Piot P. The right not to know HIV-test results. Lancet. 1995;345(8955):969-970.

    Not in our library10.1016/s0140-6736(95)90707-6

54. 54.

    Sanjobo N, Frich JC, Fretheim A. Barriers and facilitators to patients’ adherence to antiretroviral treatment in Zambia: a qualitative study. SAHARA. 2008;5(3):136-143.

    Not in our library10.1080/17290376.2008.9724912

55. 55.

    Ncama BP, McInerney PA, Bhengu BR, et al. Social support and medication adherence in HIV disease in KwaZulu-Natal, South Africa. International Journal of Nursing Studies. 2008;45(12):1757-1763.

    Not in our library10.1016/j.ijnurstu.2008.06.006

56. 56.
    Routine HIV Testing in Botswana: A Population-Based Study on Attitudes, Practices, and Human Rights Concerns · 2006

    Corrected
57. 57.

    This reference’s wording can’t be shown under the paper’s licence.

    Not in our library

58. 58.

    This reference’s wording can’t be shown under the paper’s licence.

    Not in our library

59. 59.

    Link BG, Phelan JC. Conceptualizing stigma. Annual Review of Sociology. 2001;27:363-385.

    Not in our library

60. 60.

    Mosam A, Dlova NC. HIV/AIDS in Sub-Saharan Africa. Dermatologic Clinics. 2006;24(4):421-429.

    Not in our library10.1016/j.det.2006.06.003

61. 61.

    Muula AS, Mfutso-Bengo JM. When is public disclosure of HIV seropositivity acceptable? Nursing Ethics. 2005;12(3):288-295.

    Not in our library10.1191/0969733005ne790oa

62. 62.

    Parker R, Aggleton P. HIV and AIDS-related stigma and discrimination: a conceptual framework and implications for action. Social Science and Medicine. 2003;57(1):13-24.

    Not in our library10.1016/s0277-9536(02)00304-0

63. 63.

    Alonzo AA. An illness behavior paradigm: a conceptual exploration of a situational-adaptation perspective. Social Science and Medicine. 1984;19(5):499-510.

    Not in our library10.1016/0277-9536(84)90045-5

64. 64.

    Malcolm A, Aggleton P, Bronfman M, Galvao J, Mane P, Verrall J. HIV-related stigmatization and discrimination: its forms and contexts. Critical Public Health. 1998;8(4):347-370.

    Not in our library

65. 65.

    Quam MD, Feldman DA. The sick role, stigma and pollution: the case of AIDS. Culture and AIDS. 1990;29-44.

    Not in our library

66. 66.

    This reference’s wording can’t be shown under the paper’s licence.

    Not in our library

67. 67.

    Stevenson MR. Social distance from persons with AIDS. Journal of Psychology & Human Sexuality. 1991;4:13-20.

    Not in our library

68. 68.

    Camp R, Huff B. Antiretroviral pipeline. What’s in the Pipeline: New Drugs, Vaccines, Microbicides, HCV and TB Therapies in Clinical Trials. 2006;2-20.

    Not in our library

69. 69.

    Holstad MM, DiIorio C, Magowe MK. Motivating HIV positive women to adhere to antiretroviral therapy and risk reduction behavior: the KHARMA Project. Online Journal of Issues in Nursing. 2006;11(1):p. 5.

    Not in our library

70. 70.

    Crepaz N, Hart TA, Marks G. Highly active antiretroviral therapy and sexual risk behavior: a meta-analytic review. Journal of the American Medical Association. 2004;292(2):224-236.

    Not in our library10.1001/jama.292.2.224

71. 71.

    Gilmore N, Jager JC, Ruitenberg EJ. Human immunodeficiency virus infection and AIDS: concepts and constructs. AIDS Impact Assessment Modelling and Scenario Analysis. 1992;161-188.

    Not in our library

72. 72.

    Ankrah EM, Henry K. Empowering women may help retard HIV. Network. 1994;15(2):20-21.

    Not in our library

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